Community

Data Infrastructure Collaborative Development by PCORNet CDRN / PPRN

(for reference: pcornet CDRNs, pcornet PPRNs)

• ADVANCE / OCHIN
• CAPriCORN / Northwestern
• GPC / KUMC
  • kumc-bmi/i2p-transform
    • forked from SCILHS/i2p-transform
    • earlier work: gpcnetwork/gpc-pcornet-cdm (on bitbucket)
    • supporting tool:
      • portaquery -- migrate an query between i2b2 sites
  • UNMC
    • Epic UserWeb Reports 9000400 University of Nebraska's suggestion on scripts for loading Epic Clarity data elements into i2b2
• PORTAL / Kaiser
• REACHnet
• Mid-South CDRN / Vanderbilt University
• PEDSnet / CHOP
  • PEDSnet/pedsnetcdm_to_pcornetcdm
  • https://github.com/chop-dbhi/ and more specifically
    • https://github.com/chop-dbhi/data-models-sqlalchemy
  • OHDSI/OMOPV4_PCORNetV1_ETL
• NYC-CDRN / Cornell
• OneFlorida / University of Florida
  • ufbmi/pcornet_cdm
• LHSNet / Mayo Clinic
  • LHSNet/PCORNet-CDM
• pSCANNER / UCSD
• PaTH / Pittsburgh
  • dbmi-pitt github org
• SCILHS / Harvard
  • SCILHS/i2p-transform
    • SCILHS i2b2 PCORnet Common Data Model Ontology
• PMS_DN
  • to-PCORNET-CDM
• SEDI
  • AppInformatics/SEDI_to_PCORnetCDM

De-identification of unstructured text notes

• MCW
  • MCW_BMI/unstructured-notes-deidentification

Analytics

• GPC
  • kumc-bmi/bc_qa - GPC Breast Cancer Data Quality Reporting
  • UTHSCSA-CIRD
    • chinotype - Cohort characterization by finding over and under represented facts
    • datafinisher - Post-processing DataBuilder output to create a single, flat table representing visits as time-series-- i.e. one row per patient-date and one (or more) column/s per variable
    • Rcasematch - Various methods for finding a control cohort given a disease cohort

Synthetic data lab

• DECOY - Data Entrepreneur Clinical Observables Yardstick *toward a clinical equivalent to DeSYN PUF Files''

CDM forum

• PCORnet CDM
• CDMFORUM PCORNet CDM forum github organization
  • CDM-ERRATA PCORNet CDM v3.0 errata
• CDM forum interest groups on imeet central

Crossover with CTSA

Note efforts toward CIDR collaboration starting July 2012.